Best Practices in Assessment of Research and Development Organizations: Summary of a Workshop

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The workshop will explore the benefits of and barriers to routine clinical PRO monitoring of patients. Duke's Population Health Sciences Summer Institute is an affordable opportunity to build foundational knowledge in population health sciences. Attendees of the Summer Institute will be instructed by Duke University population health researchers in the following:.

The NIH Toolbox Cognitive Battery was developed to provide an efficient way to assess domains of working memory, executive function, processing speed, episodic memory, and language in people ages 3 to 89 years. We have been carrying out research supported by NICHD to validate, and make accommodations where necessary, the battery for use in people with intellectual disability, with the ultimate goal of utilizing the tests as outcome measures in clinical trials.

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Best Practices in Assessment of Research and Development Organizations

David Hessl will share progress on these goals, including data from people with fragile X syndrome, Down syndrome and other disabilities. Opportunities at the HealthMeasures User Conference will include:. Sessions will teach the basic knowledge and skills to familiarize users with the administration of the NIH Toolbox iPad app, self- and proxy-report measures of emotional function, and the performance-based tests of cognitive, motor, and sensory function.

PROs can help tailor medical management. Its tough to integrate PROs within routine clinical care. This webinar will discuss some of the pragmatic barriers and facilitators of PRO integration within routine sub specialty care i. The presenter will also share some lessons learned during the feasibility and implementation phase of utilizing PRO integration as an experimental intervention, and patient feedback on how PROs helped create a holistic care environment rather than organ specific care. Each battery, implementation in the NIH Toolbox iPad app, and available score reporting options will be reviewed.

Participants will also learn about NIH Toolbox accessibility and use with people with disabilities. Following an overview of recent findings on NIH Toolbox validation and use in clinical populations, the workshop will conclude with a discussion of questions regarding clinical and research applications raised by course participants.

Stop by our booth to learn more! With the continued rising cost of healthcare, value-based healthcare- commonly defined as health outcomes achieved per dollar spent - is becoming of increasing interest to many stakeholders. As this movement progresses, there has been a growing interest in patient-reported outcome measures PROMs to better capture those outcomes that matter most to patients. It is critical that medical and other health services graduate students are involved in this research at the onset of the training, as they are the future of healthcare innovation and delivery. Swing by Kiosk 40 to learn more about how your health system can integrate with the API to support the administration and collection of patient-reported outcome measures at your institution.

And join us at our presentation in the Innovation Live space Tuesday, February 12th, at pm to demonstrate current user experiences.


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Learn more about Dr. This year's conference will feature plenary sessions, workshops and poster sessions focusing on the development, translation, validation, and utilization of the PROMIS measures. Sessions will focus on the integration of patient-reported outcomes with clinical practice and performance measures. This meeting brings clinicians and measurement researchers together in the same room to share best practices for putting the patient's voice first.

Learn more about HealthMeasures resources, administration options, and science at our exhibit booth. The NIH Toolbox team will be offering a pre-conference workshop Sept 29 and will be exhibiting at the conference. More details to come! Attendees will also receive practical advice on implementing PROMIS into research and clinical workflows, including options for administering CAT and short form instruments in your setting. The NHLBI Annual Sickle Cell Disease Clinical Trials Meeting is a three day meeting that provides a yearly forum for investigators, practitioners, and interested health care providers to discuss the process of ongoing clinical trials, hear presentations about new developments in scientific and clinical aspects of SCD, and interact with other investigators and NHLBI Program Staff in an informal setting.

Swing by our booths and to learn more and tell us about your experience with the app. We are proud to be part of this group of researchers, clinicians and care providers who have gathered to share their advances in dementia science. If you plan on being at the conference, please come by our exhibitor booth, Come see us at Booth ! Michael C. Computerized adaptive testing CAT refers to a collection of systems and statistical models that assemble an assessment based on the observed item responses of each individual.

This happens in real time, such that a response to the first item will help determine which item should be administered next. After watching this webinar, attendees will be able to: 1 articulate in a non-statistical way how adaptive testing works and 2 articulate costs and the benefits of an adaptive testing strategy within research and clinical PRO frameworks.

The Summer Institute is an affordable option for researchers who want to build foundational knowledge in population health sciences. Well, now you can! With administration of these tests on an iPad, it makes child engagement during testing process much easier. We will be at booth Patient Reported Outcomes PRO is now recognized as a critical component of patient-centered medical care and serves as a key indicator of intervention success.

Guidelines for selecting outcome measures tailored for a specific purpose will be outlined along with tools for score interpretation for individuals with cancer. Case studies in clinical practice and research will be presented highlighting utilization of different data collection technologies. Decision points for assessment technology will be outlined. In the final portion of the workshop, participants will break out into small groups to generate a proposal to meet the patient-centered outcome needs for specific cases studies.

A complimentary workshop will be presented via live webinar and in person during the HealthMeasures User Conference on September Researchers and clinicians who are new to using HealthMeasures are encouraged to participate. This Introductory workshop presents instructional information and hands-on demonstration of the cutting edge measurement system to assess neurological and behavioral function — the NIH Toolbox.

The advantages of employing common measures across psychological research studies and clinical practice will be addressed.

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Workshop enrollment opens Monday April 17, With expanding adoption of patient reported outcomes PROs in clinical research and practice, there is an urgent need to understand their meaning in the context of healthcare delivery. Some of the best ideas in outcomes measurement have been borrowed from the field of educational testing. One such method, Bookmarking, has been used to set standards for academic test performance.

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This method can also be used to establish thresholds for PRO levels e. Cook will discuss Bookmarking and other related techniques, and demonstrate how these methods have been extended to estimate thresholds for meaningful changes in PRO scores. Qual Life Res. This interactive workshop presents instructional information and hands-on demonstration of the cutting edge measurement system to assess neurological and behavioral function — the NIH Toolbox. The advantages of employing common measures across rehabilitation research studies and clinical practice will be addressed.

Participants will acquire the basics of computer adaptive testing and modern psychometric approaches and the building blocks for administration of the NIH Toolbox measures for emotional, cognitive, sensory and motor function via an iPad.

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Patient reported outcomes PRO are not a new concept; however, the ability to collect PRO data in real time, share this information with the patient for clinical decision making and appropriate health resource allocation is just bursting onto the healthcare scene. This webinar will demonstrate efficient PROMIS CAT collection for all patients in a high volume orthopaedic practice and show how the data is being utilized by the providers and patients to make decisions on surgery or non-operative treatments such as physical therapy.

We heard you! Recorded sessions are available for members.


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He will be joined by Epic Project manager Karteek Kondabolu. New users are invited to arrive earlier that afternoon for an optional introductory session.

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Presentations will include:. Contact Dr. Presentations will include: Using HealthMeasures in clinical practice Making meaning of scores Using PROsetta Stone methods to link HealthMeasures assessments to other commonly used instruments Technical options for data collection. Explore Measurement Systems. The report examines safety needs of the older person in traffic; reviews potential measures to improve highways, vehicles, driver and pe New Organizational Responses to the Changing Transit Environment January 1, TRB Special Report New Organizational Responses to the Changing Transit Environment assesses the effectiveness of transit organizational structures now being used and those developed in recent years, and identifies further organization changes appropriate to the new conditions and pressures transit faces.

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